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Policy Library

Here you can find our most up to date policy documents including parliamentary briefings, reports, consultation submissions and more.


October 2024

Briefing: General Debate on Lord Darzi's Independent Investigation into NHS Performance: Westminster, 7 October 2024 – PDF

The Brain Tumour Charity's briefing ahead of the General Debate on Lord Darzi's report on NHS performance.

September 2024

Briefing: Westminster Hall Debate on healthcare provision in the East of England: Westminster, 3 September 2024 – PDF

The Brain Tumour Charity's briefing document ahead of the Westminster Hall Debate on healthcare provision in the East of England.

July 2024

Handover Note: Sent to new Health Minister, Karin Smyth MP – PDF

We wanted the new Minister to get up to speed quickly on our It's A No Brainer campaign, so we sent her a Handover Note for her new role.

Letter: Joint letter to the new Secretary of State for Health, Wes Streeting MP – PDF

Alongside our friends at Tessa Jowell Brain Cancer Mission, Brain Tumour Research, Brain Tumour Support, brainstrust, Tessa Jowell Foundation and Cancer Research UK, we wrote to the new Secretary of State for Health, Wes Streeting MP requesting a meeting.

May 2024

Report: Understanding the barriers to diagnosis of brain tumours in Scotland – A roundtable discussion – PDF

The Brain Tumour Charity's report that shares discussion from a roundtable event co-sponsored with Dxcover Ltd in February that discussed the barriers to diagnosis that those affected by brain tumours face in Scotland. The report includes recommendations for how pathways can be improved and how NHS Scotland can best prepare for the establishment of a diagnostic/triage tool.

March 2024

Briefing: Brain Tumour Awareness Month Members' Business Debate: Scottish Parliament, 26 March 2024 – PDF

The Brain Tumour Charity's briefing for Members of Scottish Parliament (MSP) for the debate on Brain Tumour Awareness Month.

Report: A National Brain Tumour Strategy: It's a No Brainer – PDF

The Brain Tumour Charity's new report looking at why a National Brain Tumour Strategy should be implemented across all four devolved nations.

February 2024

Briefing: Ten Minute Rule Motion, Second Reading – Brain Tumours: Westminster, 28 February 2024 – PDF

The Brain Tumour Charity's briefing for MPs ahead of the Second Reading of the Ten Minute Rule Motion on Brain Tumours due to be heard in the House on the 28 February 2024.

October 2023

Briefing: Ten Minute Rule Motion, First Reading – Brain Tumours: Westminster, 18 October 2023 – PDF

The Brain Tumour Charity's briefing for MPs ahead of the First Reading of the Ten Minute Rule Motion on Brain Tumours due to be heard in the House on the 18 October 2023.

June 2023

Submission: Major Conditions Strategy, government consultation – PDF

The Brain Tumour Charity's submission to the government's consultation of its Major Conditions Strategy, a strategy that will look at six major groups of conditions that contribute to disease in England, including cancer. This Strategy will replace the proposed 10-Year Cancer Plan consultation that we submitted to in May 2022 (response below). The government has stated that the responses received in the 10-Year Cancer Plan consultation will also be taken into consideration for the Major Conditions Strategy. Our short submission here is in addition to our 10-Year Cancer Plan response from last year.

April 2023

Submission: Future Cancer Inquiry by the Health and Social Care Select Committee – PDF

The Brain Tumour Charity's submission to the Health and Social Care Select Committee's Future Cancer Inquiry. This inquiry looks at innovations in cancer diagnosis and treatment. It will look at the innovations with the greatest potential to transform cancer diagnosis and treatment for patients in the short, medium and long term, and it will examine how innovations in diagnosing and treating cancer can best be transitioned into frontline clinical settings. Our submission includes the latest in brain tumour innovations.

March 2023

Report: Fighting for A Faster Diagnosis – PDF

The Brain Tumour Charity's full report on how we can improve diagnosis times for those with suspected symptoms of a brain tumour.

Briefing: Faster Diagnosis of Brain Tumours, MP briefing – PDF

The Brain Tumour Charity's briefing for MPs on the subject of faster diagnosis of brain tumours. For further information please email policy@thebraintumourcharity.org

Briefing: General Debate on Research Funding for Brain Tumours: Westminster, 9 March 2023 – PDF

The Brain Tumour Charity's briefing for the General Debate on the topic of research funding for brain tumours that is taking place on Thursday 9 March in the House of Commons. For further information please email policy@thebraintumourcharity.org

August 2022

Submission: Scottish Data Strategy for Health and Social Care – PDF

The Brain Tumour Charity's submission to the Scottish Government's Data Strategy consultation highlighting the unique challenges facing those diagnosed with a brain tumour when it comes to data and research. We look forward to working with the Scottish Government further on this.

June 2022

Submission: Scottish Cancer Plan – PDF

The Brain Tumour Charity's submission to the Scottish Government's Cancer Strategy consultation highlighting the unique challenges facing those diagnosed with a brain tumour. We need to see brain tumour patients recognised in the Scottish Cancer Strategy when it is published including in action around research funding, earlier diagnosis, personalised care and improved treatments.

May 2022

Submission: 10 Year Cancer Plan – PDF

The Brain Tumour Charity's submission to the Government's 10 Year Cancer Plan consultation highlighting the unique challenges facing those diagnosed with a brain tumour. We need to see brain tumour patients recognised in the 10 Year Cancer Plan when it is published including in action around research funding, earlier diagnosis, personalised care and improved treatments.

April 2022

Briefing: Health and Care Bill amendment debate: Westminster, 25 April 2022 – PDF

Without sustained investment in NHS staffing and a detailed plan for the future of the cancer workforce, the gap between staff available to carry out roles and the need from patients for appropriate support could continue to widen. The Lords’ amendment (29B in lieu) on workforce planning is an opportunity to put the NHS and social care workforce back on a sustainable footing, and ensure the system can bring down waiting lists and provide the care that people need.

March 2022

One Cancer Voice Cancer Charities' Consensus Statement 10-Year Cancer Plan: Call for Evidence – PDF

The Brain Tumour Charity has signed up to a consensus statement developed by One Cancer Voice, a collaborative group of over 50 cancer charities, welcoming the Government’s Call for Evidence to inform a new 10-Year Cancer Plan. In the statement, we set out 10 tests that the new 10-Year Cancer Plan must meet if it's to be successful in delivering world-leading and transformative change for cancer patients.

Briefing: Analysis of the IBTC survey results showing worrying variation in care for brain tumour patients across country – PDF

The Brain Tumour Charity has recently published the results from our Improving Brain Tumour Care survey (IBTC). These show us that brain tumour patients up and down the country are being left behind when it comes to their treatment and care needs.

Briefing: Welsh analysis of the IBTC survey results showing worrying variation in care for brain tumour patients across Wales – PDF

The Brain Tumour Charity has recently published the results from our Improving Brain Tumour Care survey (IBTC). These show us that brain tumour patients up and down the country are being left behind when it comes to their treatment and care needs. This briefing analyses the Welsh survey results.

Briefing: Scottish analysis of the IBTC survey results showing worrying variation in care for brain tumour patients across Scotland – PDF

The Brain Tumour Charity has recently published the results from our Improving Brain Tumour Care survey (IBTC). These show us that brain tumour patients up and down the country are being left behind when it comes to their treatment and care needs. This briefing analyses the Scottish survey results.