Step by Step: Your interactive guide to life with a brain tumour
Our Step by Step guide takes you through the practical changes you might experience following a brain tumour diagnosis. It covers everything from when you first feel poorly through to what happens after treatment.
Inside you’ll find an outline of what to expect following a diagnosis to help answer some of your concerns and arm you with the right questions to ask your healthcare team.
Our interactive Step by Step guide helps explain what happens after somebody receives a brain tumour diagnosis – from first experiencing symptoms and getting a diagnosis to receiving and recovering from treatment.
The guide is broken down into seven stages, with each stage having multiple different milestones you may experience – for example, these are the milestones for the “Having neurosurgery” stage of the guide.
As well as letting you know what to expect, we’ve also outlined key areas and ideas to help support you, every step of the way – including, what you should be experiencing, actions you can take and questions you should ask your healthcare team.
Access our Step by Step guide
We know that this can be a scary time, so it might help to know more about how we can support you. If you’d like to hear more about our services, you can choose to share a bit more information about yourself in the form below, that way we can send you an email with specific support for you. Otherwise, you can just skip straight to getting the guide by selecting that option.
And, if you would like more information, you can find lots of support on our site. We have helpful information on living with a brain tumour and getting the best treatment and care.
What’s in the Step by Step interactive guide?
Here are some of the sections you’ll find in the guide:
Looking for help and a cause for symptoms
Gives advice on where to find symptoms as well as interactive features helping you through keeping a record of your symptoms. It also includes advice on seeing a GP and what questions you should ask.
Getting a diagnosis
This covers the journey of receiving a diagnosis. We offer advice on how to feel confident in understanding your diagnosis and the next steps. This stage covers everything from the consultation and scan to your decision on treatment.
Having neurosurgery
Some treatment plans involve brain surgery. If this is included in your treatment plan, this section will help give you an idea of what to expect from your pre-op assessment, recovery, and follow-up stages.
Ongoing treatment and monitoring
This section covers other types of treatment, like chemotherapy and radiotherapy. It also provides information on how your medical team will monitor you during and after treatment.
Managing life changes and rehabilitation
A brain tumour diagnosis can have a big impact on many areas of your life. In this section we offer insight into some of these changes and advice on how to cope with them. We cover everything from coping emotionally and physically to managing relationships and finances.