Author: Jade Passey
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“Our world came crashing down when Lizzie was diagnosed with a diffuse midline glioma”
Lizzie Bramall, from Nayland, was just nine when she was diagnosed with a diffuse midline glioma – one of the most aggressive paediatric high-grade gliomas.
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The BRAIN MATRIX study identifies urgent need for improvement in healthcare services
Researchers involved in the Tessa Jowell BRAIN MATRIX study are calling for improvements to speed up the way brain tumours are diagnosed.
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“There is nothing more important than saving lives and without research the reality is that lives will be lost.”
Toni O’Callaghan tells us about her son Jay’s glioblastoma diagnosis in 2021 and highlights the importance of funding glioblastoma research.
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Quest for Cures funding announcement
We are pleased to announce that we have awarded £4.5 million to three new, exciting research initiatives.
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“There needs to be a better roadmap for glioblastoma recurrence”
Laura Smallbone’s husband, Peter, died on 8th July 2022 after his glioblastoma recurred and there were no remaining treatment options available.
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Scientists at the Everest Centre to transform treatments for childhood brain tumours
Experts at University College London, Queen Mary University of London and Great Ormond Street Hospital are to develop pioneering treatments for children diagnosed with low-grade brain tumours.
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“I was told at 24 years old that I am terminally ill and given a prognosis. There’s no good way to cope with that.”
Mia Bowater-Wragg, 26, from Sheffield, received a glioblastoma diagnosis in March 2021, having first learned that she had a brain tumour in 2018.
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Whole genome sequencing – what is it and how could it help?
Whole genome sequencing is the scientific term used when scientists sequence DNA.
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BRAIN MATRIX: Pioneering research to improve treatments for gliomas
Researchers at the University of Birmingham are paving the way to improve brain tumour treatment in a revolutionary study which collects detailed information about a person’s tumour.
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Key biomarker for aggressive meningiomas identified by researchers
Researchers at the University of Toronto have identified a biomarker that can predict how aggressive meningiomas may be in those diagnosed with this type of brain tumour.
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ARISTOCRAT – a pioneering trial using a cannabinoid-based drug to treat brain tumours
A major UK clinical trial of an oral spray containing cannabinoids to treat the most aggressive brain tumour has opened at Leeds Teaching Hospitals NHS Trust and The Christie NHS Foundation Trust, Manchester.
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“Research into brain tumours is crucially important”
Ben Johnson, 24, from Islington, was diagnosed with a brain tumour in November 2019, after suffering a seizure while at university in London.
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Living with a pilocytic astrocytoma – Jerome’s story
Jerome van Leeuwen, age 42, originally from The Netherlands and now living in Fife, Scotland was first diagnosed with a pilocytic astrocytoma brain tumour when he was just two years old, it later returned in his 30s.
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Funding for state-of-the-art research into new brain tumour treatments begins
The Charity is supporting innovative research at the University of Sheffield, many years on from funding its very first research project there.
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“I refuse to be defined by my diagnosis – Karen Bucknall’s story
Karen Bucknall, 52, from Gloucestershire was diagnosed with a brain tumour in 2021 after she sought an explanation for the headaches she was experiencing throughout her chemotherapy treatment for stage 3 bowel cancer.
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72% of UK adults unable to name a single brain tumour symptom
In a survey of 1,000 people in the UK, nearly 3 in 4 are unable to name a single symptom of a brain tumour, The Brain Tumour Charity finds.
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Scientists join forces to transform treatments for childhood brain tumours
Experts at The Everest Centre are delivering a cutting-edge program of scientific research to develop pioneering new treatments for children diagnosed with low-grade brain tumours, following major new funding from The Brain Tumour Charity.
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“This should never have been part of Ramona’s life”
Ramona Read was just nine-years-old when she was diagnosed with a low-grade pilocytic astrocytoma in 2021. Her mum, Vicky, shares their story ahead of their appearance on Channel 4’s The Dog House – where families are matched with dogs who hope to find their forever home.
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Lifestyle coaching may help reduce fatigue and improve mental health for those with a brain tumour.
Offering coaching to promote healthy lifestyles could help reduce severe fatigue for patients following brain tumour treatment, a clinical trial has found.
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Pioneering new cancer vaccine planned in England
The government have signed an agreement with German pharmaceutical company BioNTech to ensure their innovative vaccine research comes to England.
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Childhood medulloblastoma origin uncovered, opening new doors for treatment
Researchers have found the origin of group 3 and 4 childhood medulloblastoma, which could help develop new treatments for children diagnosed with one of the most common forms of cancerous brain tumour.
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Ulixertinib may change childhood brain tumour treatment
New research suggests that ulixertinib may offer one of the first targeted therapies for the most common form of brain tumour in children.
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Trial finds DCVax-L may prolong the lives of those living with a glioblastoma
A major phase III clinical trial has found that novel treatment DCVax®-L may prolong the lives of people diagnosed with a new or recurrent glioblastoma.
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World-leading expert appointed as The Brain Tumour Charity neuro-oncology chair at University of Manchester
We are delighted to announce the appointment of the first-ever The Brain Tumour Charity Chair of Translational Neuro-Oncology at The University of Manchester’s Cancer Research Centre (MCRC).