Category: Policy & Public Affairs
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Where are the gaps in brain tumour care?
Your responses to our Improving Brain Tumour Care surveys have helped us understand what gaps exist in brain tumour care – here’s how we’re filling those gaps.
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Exploring the results of the Cancer Patient Experience Survey 2022
Results show that brain cancer has the lowest rating of care across all cancer types.
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Widening the debate around treatment
We praise the launch of OurBrainBank’s new policy report and share how it ties in with our research strategy and innovations around treatment for glioblastomas.
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Being a neuro-oncology nurse – Guest Post by Ingela Oberg
In this guest post, Ingela Oberg, an adult neuro-oncology nurse manager at Addenbrookes Hospital in Cambridge, explains why she went into medicine and what her role entails.
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NHS England publish their Long-Term Workforce Plan
We look at what NHS England’s Long-Term Workforce Plan could mean for the brain tumour community.
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Scottish Cancer Strategy: What is it and what does it mean for us?
The Scottish Government has launched its Cancer Strategy outlining its plan to improve cancer services and overall survival in the next 10 years.
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Early Day Motion submitted honouring Laura Nuttall
Laura Nuttall, who passed away from a brain tumour on Monday 22 May, has inspired an Early Day Motion (EDM) to be put forward in parliament. Find out about this EDM and why it is a lovely way to pay tribute to this inspirational campaigner.
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What the new NHS drive to quicken diagnosis times means for us
NHS England has asked hospitals to work towards a 10 day turnaround for delivering diagnosis results but what does this mean for our community and what more can be done to improve diagnosis times for those affected by brain tumours?
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Raising the importance of Faster Diagnosis in Westminster
During Brain Tumour Awareness Month, we visited Westminster and met with MPs to campaign for faster diagnosis of brain tumours.
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Better Safe Than Tumour comes to Holyrood
We visited Scottish Parliament during Brain Tumour Awareness Month to promote Better Safe Than Tumour – our awareness campaign!
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Launching our new Fighting for Faster Diagnosis report
Today marks the launch of our new report explaining the urgent need for faster diagnosis of brain tumours and how policymakers can help make this happen.
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Why we want to talk about a faster, not an earlier, diagnosis
Learn more about why, together with brainstrust, we’re advocating for changing the narrative from early diagnosis to faster diagnosis.
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All-Party Parliamentary Group on Brain Tumours launches landmark Inquiry report
Yesterday the APPGBT launched their report ‘Pathway to a Cure – Breaking Down the Barriers’ looking at how the government can best support research into brain tumours.
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New Tessa Jowell Brain Cancer Mission report
To mark their five year anniversary, The Tessa Jowell Brain Cancer Mission has published a report highlighting the variations in care across NHS brain cancer services in the UK
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Why we’re campaigning for faster diagnosis
Find out more about the benefits of faster diagnosis and what you can do to help us create meaningful, lasting change for people affected by a brain tumour.
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What’s happened to the 10-Year Cancer Plan?
We have joined up with more than 60 charities to call upon the government to uphold the promises previously laid out within the 10-Year Cancer Plan and commit to dramatically improve cancer care across England.
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Less Survivable Cancers Awareness Day
Wednesday 11 January was the second ever Less Survivable Cancers Awareness Day. And, we were all over the UK representing our aim of finding a cure faster!
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We respond to national roll-out of fast-track cancer testing in England
NHS England has announced a national roll-out of ‘fast-track testing’ to help detect cancer
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What is the 10-Year Cancer Plan?
The 10-year Cancer Plan for England aims to set out a vision and long term approach for cancer services in England until 2032
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Headline Findings from the Cancer Patient Experience Survey 2021
The Cancer Patient Experience Survey 2021 results show that brain cancer has the lowest rating of care across all cancer sites
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Involvement Champion Attends the All Party Parliamentary Group on Cancer
Phillipa Anders, an Involvement Champion at The Brain Tumour Charity, shares her experience attending the All Party Parliamentary Group on Cancer
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We respond to new NHS waiting times for suspected brain cancer
NHS data shows waiting time targets for suspected brain cancer in England were missed for the fifth time in last six months.
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The need for more research participation opportunities
Every patient should have the opportunity to help contribute to the overall goal of meeting the needs of everyone affected by a brain tumour.
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Open letter from NHS, charity and community leaders to people with a weakened immune system
In May, we joined together with the NHS and many other charity leaders to co-sign the open letter below, encouraging people with a weakened immune system to continue to book in or visit a walk-in centre for their COVID-19 vaccines including a Spring booster dose.