Category: Policy & Public Affairs
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Maintaining the access to medicines
Since the vote for Brexit in 2016, there has been the possibility of the UK leaving the EU without a deal. Consequently, to avoid disruption if supply routes from the EU were affected, the Government asked pharmaceutical companies to stockpile an extra six weeks’ worth of medicines.
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Grandmother launches Westminster petition calling for more research into DIPG
When her grandson Logan died from a DIPG brain tumour in 2017, Fiona vowed to drive change for everyone affected.
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The future regulation of clinical trials
With the UK in the Brexit transition period until the end of the year, regulation of clinical trials is likely to be under discussion in UK-EU negotiations on the future relationship
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New figures show increase of research funding for brain tumours
The level of funding into the research of brain tumours in the UK has increased overall by a third, according to figures released by the National Cancer Research Institute (NCRI).
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Standing together with the Less Survivable Cancers Taskforce
Our Young Ambassador, Hannah Kinsell, visited Westminster yesterday to speak to MPs about the work of The Brain Tumour Charity as part of World Cancer Day.
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Supporting the Scottish brain tumour awareness and research petition
Launched by Fiona Govan, whose grandson died from a DIPG in 2017, the petition aims to accelerate research.
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Cancer registration statistics England released today
The number of brain tumours diagnosed among children has shown little change from the previous year, according to provisional, cancer registration data released by Public Health England (PHE).
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Steps being taken to address the NHS nursing shortage
Throughout the UK, the health service is in the midst of a considerable staffing shortfall, with the issue most acute in nursing.
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Italian court rules that mobile phones cause brain tumours
Yesterday an Italian court upheld a ruling that prolonged use of mobile phones caused a man’s brain tumour despite worldwide research finding no link.
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New Welsh cancer statistics demonstrate the urgent need for more progress
The incidence of brain and central nervous system cancer in Wales has seen only a negligible drop from the previous year.
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Brexit: what happens next?
Boris Johnson entered December’s general election promising to ‘get Brexit done’. The electorate gave him the opportunity to do so. Adrian Houghton, our Policy Officer, examines the current key issues still at stake for our community.
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Comparing the Party Manifestos
With a general election to take place on December 12, The Brain Tumour Charity has published our Manifesto, which would ensure that the incoming Government meets the needs of our community.
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New Less Survivable Cancers Taskforce report released today
Brain tumours among diseases that miss out on research funding, says our joint charity report
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National Cancer Patient Experience Survey for England 2018 results are out today
This morning saw the release of the annual results from the English National Cancer Patient Experience Survey for 2018.
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The Scottish Government and Macmillan Cancer Support announce £18m funding for cancer support workers in Scotland
Announced today, this fund will make Scotland the first country in the UK to offer cancer patients guaranteed emotional, practical and financial advice.
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NICE publish disappointing draft guidance on cannabis-based medicinal products
The National Institute for Health and Care Excellence (NICE) published draft recommendations regarding the use of cannabis-based medicinal products in England on 8 August 2019 which are unfortunately disappointing.
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New figures show improvement in brain tumour survival
Survival after a high-grade brain tumour diagnosis is slowly improving according to new figures from the Office for National Statistics.
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Driving change across the UK
A quick update on just some of the activities our Policies and Public Affairs team have been involved in so far this year.
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Driving change in Scotland
Our Policy & Public Affairs Officer, Helena Brown, reports from Scotland
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The response to our joint cancer charity letter to the Department of Health
In February, we co-signed a joint letter with other cancer charities to the Secretary of State for Health and Social Care which outlined concerns regarding cancer research in the UK post Brexit
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Three things from NHS England’s interim workforce plan
Earlier this month, NHS England released their ‘Interim NHS People’s Plan’ detailing what measures will be implemented in and ahead of their full workforce proposal
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Data access vital for NHS digital revolution
The Health Secretary, Matt Hancock, has spoken today of his frustration at slow progress towards embracing digital technology in the NHS.
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Remembering Tessa Jowell, one year on
This weekend marks a year since Tessa Jowell died from a brain tumour
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The Charity holds the first ever brain tumour roundtable in Wales
The Brain Tumour Charity held the first ever roundtable on brain tumours in Wales, bringing together a wide range of stakeholders within the brain tumour community to discuss what needs to be achieved to improve patient outcomes in Wales.