Category: Policy & Public Affairs
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Our UK-wide report highlights the financial consequences of a brain tumour diagnosis
Last week, Rachel and Chris Nelson told their story about the difficulties of living on benefits after their young son was diagnosed with a brain tumour.
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Cannabis-based medicinal products available by special prescription by 1 November
Yesterday the Home Secretary, Sajid Javid MP, announced cannabis-based medicinal products will be available through special prescription by 1 November to patients in England, Wales, Scotland and Northern Ireland
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Launch of The Less Survivable Cancers Taskforce petition
Today sees the launch of the taskforce’s petition to commit NHS England to accept its five-year survival target
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UK Government announces plan to improve cancer diagnosis
Last week the Government announced it will roll out a package of measures across the country aimed at seeing three out of four of all cancers detected at an early stage by 2028.
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Policy blog: Day two at Conservative Party conference
Cameron Miller, Head of Policy & Public Affairs, reports from the 2018 Conservative Party annual conference
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Day one at Conservative Party conference
Cameron Miller, Head of Policy & Public Affairs, reports from the first day of the 2018 Conservative Party annual conference
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The last day of the 2018 Labour Party conference
Cameron Miller, our Head of Policy & Public Affairs, reports from day three at the 2018 Labour Party annual conference
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Day three at the 2018 Labour Party annual conference
Kielan Arblaster, our Policy & Public Affairs Assistant, reports from day three at the 2018 Labour Party annual conference
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Day two at the 2018 Labour Party annual conference
Monday marked the Policy team speaking and engaging with MPs and delegates for the second day of the 2018 Labour Party annual conference. Kielan Arblaster reports
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The Brain Tumour Charity at the Labour Party 2018 annual conference
Kielan Arblaster, our Policy & Public Affairs Assistant, reports from the conference
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Update from the Less Survivable Cancers Taskforce
Cameron Miller, Head of Policy & Public Affairs highlights our recommendations for the NHS long term plan
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The Scotland Steering Committee at the Scottish Parliament
Cameron Miller, Head of Policy & Public Affairs, reports from the day’s proceedings
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Less Survivable Cancer Taskforce doubling survivable statement
Today sees the launch of the Less Survivable Cancer Taskforce’s campaign to double five-year survival for each of the six less survivable cancers
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The Brain Tumour Charity submits DCVax®-L consultation response
This week The Charity submitted its patient organisation consultation response about the potentially-groundbreaking new treatment DCVax®-L.
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National Cancer Patient Experience Survey (NCPES)
Last Friday (27th July), the findings of the National Cancer Patient Experience Survey 2017 (NCPES) were published.
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Parental Bereavement (Leave and Pay) Bill passes final Parliamentary hurdle
The Parental Bereavement (Leave and Pay) Bill has just passed its third reading in the House of Lords and is expected to come into force in April 2020.
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Developments for the European Medicines Agency
On Tuesday night, MPs in Westminster adopted an amendment to the Trade Bill which indicates support for the United Kingdom remaining in the regulatory framework of the European Medicines Agency (EMA)
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The new NICE guidelines entitled ‘Brain tumours (primary) and brain metastases in adults’
These guidelines, published today, have been updated for the first time in over a decade
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Government announcement on Personal Independence Payment (PIP)
Last week the Government announced that people with severe, life-long conditions will no longer have to attend regular reviews for Personal Independence Payment (PIP).
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Theresa May’s Speech on the NHS
Helena Brown, our Policy & Public Affairs Assistant, outlines the current postcode disparity in patient experience
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Cannabis oil – A patient’s right to choose
Last week, Billy Caldwell, a severely epileptic twelve year old boy, had his cannabis oil confiscated at Heathrow airport
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Parental Bereavement (Leave and Pay) Bill – a start, but not yet enough
Keilan Arblaster, our Policy Involvement Assistant, outlines the implications of this bill for our community
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Patient choice: Should patients have more freedom to choose?
Tonight we watched an emotional Panorama following three families as they contend with a high grade brain tumour diagnosis.
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Is it time for the UK to have the right to try?
Kielan Arblastar, our Policy & Affairs Assistant, discusses the implications of the US Government’s Right to Try bill