Category: Policy & Public Affairs
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The implications of the Scottish Parliament brain tumour debate
Our Policy & Public Affairs Manager Cameron Miller, outlines tomorrow’s MSP debate in the Scottish Parliament
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Post APPG Brexit
This week our Chief Scientific Officer, Dr David Jenkinson, is speaking at a meeting of the All Party Parliamentary Group on brain tumours about what risks Brexit poses
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MSPs to debate need for greater awareness of brain tumours in Scottish Parliament
Inspired by our Community Fundraiser Shona Richardson’s personal story, Alexander Stewart MSP has tabled a debate in the Scottish Parliament on 7 December
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Brain tumours: The hot soap storyline
Are they good for raising awareness or should the bubble burst? Our senior media & PR Officer Carol Dyce examines
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The uniting of our international brain tumour community
Our Policy & Public Affairs Manager, Cameron Miller, on Australia’s Cure Brain Cancer AU$100m investment fund
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The hurdles of medical research that face the SNP
Jonathan Canty, our Project Information Analyst, reflects on the SNP Conference in Glasgow last week
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Debate is key at the Conservative Party Conference
Our Policy & Public Affairs Manager Cameron Miller, reports from the Conservative Party Conference.
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Data sharing discussion at the Labour Party conference
Our Policy & Public Affairs Manager, Cameron Miller, writes from the frontline of the party conference in Brighton
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A new public petition highlights the devastating impact of DIPG
A diffuse intrinsic pontine glioma (DIPG) diagnosis can be one of the most difficult things for a parent to hear, leaving families feeling helpless and desperately frustrated with the devastating prognosis.
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Charity coalition demands patient experience continues to be measured
Sarah Lindsell, The Charity’s Chief Executive, has co-signed a letter urging the Secretary of State for Health, Jeremy Hunt, to protect England’s largest annual survey of cancer patient experience in the NHS
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A response to the UK Government’s position paper on science & innovation
We believe brain tumour patients need a ‘global Britain’ after Brexit. The UK Government has published an important paper outlining its current position on scientific cooperation for when the UK leaves the European Union
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Our response to The Life Sciences Industrial Strategy
Yesterday the UK Government published the recommendations of an independent review of the UK Life Sciences industry
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English Cancer Patient Experience Survey published
Earlier today, the English Cancer Patient Experience Survey was published, providing an insight into the experience of 72,288 cancer patients over the age of 16 in 2016
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Welsh government publishes second Cancer Patient Experience Survey
Yesterday, Macmillan Wales and the Welsh Government published the second Wales Cancer Patient Experience Survey
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General Election 2017 result: No overall majority as Labour make unexpected gains
After seven weeks of relentless political campaigning across the UK, voters finally had their say at polling booths on Thursday, as a shock ‘hung parliament’ result emerged
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Proud to be part of the launch of Less Survivable Cancers Taskforce
Yesterday saw the launch of the Less Survivable Cancers Taskforce to an audience of members of the Scottish Parliament in Holyrood, Edinburgh
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United in the call for brain tumour one-year survival targets to be met
The Brain Tumour Charity CEO, Sarah Lindsell, has co-signed a letter to NHS organisations urging them to meet their one-year survival targets for the early diagnosis of brain tumours.
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As a snap general election is called, our battle continues
While Theresa May admits division in Westminster, our Chief Executive Sarah Lindsell says we must stand together stronger than ever to defeat brain tumours.
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How we’re fighting for people affected by brain tumours
From establishing a new cancer taskforce to ensuring benefits reviews take brain tumour patients into account, read our roundup of key activities from the past few weeks.
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We know mental health can affect those living with a brain tumour, but are we doing enough?
Ally Rooney posts an open letter to doctors, nurses, and allied health professionals who care for people with a brain tumour.
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How has DevoManc affected The Brain Tumour Charity?
Last year, Greater Manchester became the first English region to gain control of health spending. Read our view on the impact this has had on charities.
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Our work with House of Lords Select Committee on Charities
On Sunday 26 March, the House of Lords Select Committee on Charities published a report, ‘Stronger charities for a stronger society’, following an inquiry into issues facing the charity sector in England and Wales.
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Childhood cancer patients in the UK will miss out on access to clinical trials for new treatments
Many news outlets are today reporting concerns from medical research institutions that childhood cancer patients in the UK will miss out on access to clinical trials for new treatments following Brexit.
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Is the EAMS failing patients?
Cameron Miller, our Information & Support Services Manager, outlines the growing trend for crowdfunding for treatment funds.