Category: Policy & Public Affairs

On Monday The Brain Tumour Charity attended the second meeting of the task and finish working group on research into brain tumour (TFWG) which was set up by the Department of Health to address barriers to research.

Policy Officer, James Thorneycroft, discusses how leaving the EU could affect research into brain tumours.

David Jenkinson, Chief Scientific Officer at The Brain Tumour Charity, discusses laying foundations for more effective brain tumour treatments.

In response to overwhelming concerns from our community The Brain Tumour Charity met with the Driver and Vehicle Licensing Agency (DVLA) in Swansea to discuss issues around driving and brain tumours.

A drug that can extend the lives of brain tumour patients is being withheld by some NHS Trusts on the grounds of cost.

Beccy Shortt, our Senior Policy and Public Affairs Manager at The Brain Tumour Charity explores the barriers surrounding brain tumour research.

Patients diagnosed with cancer should be told clearly how the NHS will store and use information about their case to help others in future, says a new report.

The Science and Technology Select Committee has today published a new report on the implications and opportunities of leaving the EU for science and research in the UK.

We attended the Task and Finish Group on brain tumour research. As experts in the brain tumour research landscape, we were invited to be part of this group following the petitions committee debate on the funding of research.

While a new study reveals people are twice as likely to live at least 10 years after being diagnosed with cancer than at the start of the 1970s, this doesn’t tell the complete story.

One in two people affected by a brain tumour experience financial difficulty and 28% of people with a brain tumour had to give up work entirely.

An innovative programme to improve the care and experience of patients with incurable cancer is being rolled out across the country.

People affected by a brain tumour continue to report a poorer experience of diagnosis, treatment and care when compared across all cancers according to the largest survey of cancer patients in England.

The National Institute for Health and Care Excellence (NICE) have today released a new Quality Standard (QS) for referral when Cancer is suspected.

On the 23rd June 2016 the UK voted to leave the European Union (EU). We do not yet know how this will affect the brain tumour community.

The report follows a debate about funding for brain tumour research in the House of Commons on April 18.

We are working with Cancer Research UK, Macmillan Cancer Support and other cancer charities to make recommendations to Government on the subject of cancer registry data.

Late diagnosis is common for people diagnosed with a brain tumour. 53% of high grade brain tumours were diagnosed as an emergency in 2013 – more than any other cancer.

Yesterday saw the Petitions Committee report on research funding into brain tumours debated by MP’s in Westminster Hall. Over 40 MPs spoke at the debate, with only standing room left as proceedings began.

A call for government action to prioritise brain tumour awareness and research funding will be debated in the House of Commons on April 18.

Ahead of the national elections in May 2016 we have launched manifestos in Wales, Northern Ireland and Scotland.

Last week, the UK Government announced changes to the eligibility criteria for Personal Independence Payments (PIP) as part of the 2016 Budget.

The e-petition calls on larger cancer charities and the government to invest more in research into brain tumours.

This March we’ll be launching manifestos in Scotland, Wales and Northern Ireland ahead of the devolved nations’ elections in May.