Category: Supporter stories
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The ARISTOCRAT clinical trial – perspective from a patient advocate
Peter Buckle is a patient advocate and has worked with several teams, including the ARISTOCRAT team to champion research and clinical trials.
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Amazing Alan hopes to hit £100k target with Boston Marathon run
Alan Johnstone, who lost his wife Anneka to a brain tumour, is representing The Charity in the Boston Marathon on 15 April.
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Living with a brain tumour inspired Anna to write Little Nipper to the Rescue
Her children’s book is about the community bus she travelled on daily, having had to surrender her driving licence.
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Connor, 22, takes on tough challenge to raise funds
Connor Moir, from Aberdeen, will line up for the HYROX Fitness Race, Glasgow, just 18 months after a brain tumour left him unable to walk.
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The glioblastoma diagnosis that changed our lives
Five years on, Nikki Saunders shares her experience of both her mum and brother being diagnosed with a glioblastoma.
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12 ways you’ve given the gift of time in 2023
Come with us as we look back at some of the ways you, the brain tumour community, has given the gift of time in 2023.
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“Carpe Diem, that motto is important to me. I live in the moment”
Natalie McKenna-Mounty was diagnosed with a glioblastoma in 2020, her tumour returned in June this year, and now she is supporting our new research funding to find better glioblastoma treatments.
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“Looking back… there were loads of symptoms I brushed off.”
Catrin George-Carey was diagnosed with a rare brain tumour in March 2022. Now back at work following successful surgery, she’s highlighting the brain tumour symptoms that she initially brushed off – so that others don’t do so!
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Life-changing treatment means Zac lives a relatively normal life
Zachery Eckworth, now 11 years and living in Hampshire, was just 14 months old when we was diagnosed with an optic nerve glioma.
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Sheffield scientists take on Sheffield 10K to raise money
Researchers from the University of Sheffield ran the Sheffield 10K on 24th September to raise money for us, a charity close to their hearts.
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To our 2023 Great North Run Team – thank you!
On September 10th, our team of 140 runners took on the Great North Run for The Brain Tumour Charity. In this post, runners and Charity team members share their thoughts on a memorable day.
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Harry Smith wins JustGiving Young Fundraiser of the Year!
He has raised more than £29,000 for The Charity in memory of his sister, Emily.
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“There’s no other word for it, her treatment and the side effects were brutal”
Layla Mistry, now nine, from Sonning, in Berkshire, was just two when she was diagnosed with medulloblastoma in July 2016.
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Alastair’s Story: Part One – Crossing a Threshold
In this four-part series, Ali Travis, who was diagnosed with a high-grade glioma at just 32, shares his beautifully written and, somehow, positive experience of coming to terms with his diagnosis.
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Alastair’s Story: Part Two – A robot called Stealth
In his second guest blog post, Ali Travis describes coming to terms with his diagnosis and explaining it to his loved ones.
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Alastair’s Story: Part Three – A Battle We’ll Lose
In the third of a four-part series, Ali Travis, who is living with a high-grade glioma, shares his experience of coming to terms with his diagnosis.
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Alastair’s Story: Part Four – Best Year of my Life
In the last of this four-part series, Ali Travis explains how being diagnosed with cancer taught him that “a good life cut short, is still a good life.”
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“Our world came crashing down when Lizzie was diagnosed with a diffuse midline glioma”
Lizzie Bramall, from Nayland, was just nine when she was diagnosed with a diffuse midline glioma – one of the most aggressive paediatric high-grade gliomas.
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Madelaine’s Big Bake Memories – Guest post by Madelaine Powell
Inspired by The Big Bake, read Madelaine’s thoughts as she looks back over the last decade of her mum’s brain tumour diagnosis.
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“There is nothing more important than saving lives and without research the reality is that lives will be lost.”
Toni O’Callaghan tells us about her son Jay’s glioblastoma diagnosis in 2021 and highlights the importance of funding glioblastoma research.
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Three Peaks Cycle Challenge 2023
Follow Richard and his friend Will as they take on the ultimate Three Peaks Challenge in memory of Richard’s mother, who passed away from a brain tumour in 2019.
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“There needs to be a better roadmap for glioblastoma recurrence”
Laura Smallbone’s husband, Peter, died on 8th July 2022 after his glioblastoma recurred and there were no remaining treatment options available.
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Extreme Fundraising for a cure
Have you ever thought about taking on an extreme fundraising challenge but was never sure where to start? Take inspiration from some of our incredible community who have gone to the extreme when it comes to accelerating a cure for brain tumours.
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“I was told at 24 years old that I am terminally ill and given a prognosis. There’s no good way to cope with that.”
Mia Bowater-Wragg, 26, from Sheffield, received a glioblastoma diagnosis in March 2021, having first learned that she had a brain tumour in 2018.