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National Bereaved Parents Day: Eva’s story
National Bereaved Parents Day (3 July 2024) exists to raise awareness for all parents who have lost a child of any age, to keep conversations going and to show the bereaved parent community that they are not alone. To mark this day, Emma and Dean, parents to Eva and Founders of Eva’s Angels, generously share their family’s story.
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I was in Ravi’s Dream Team Choir!
As our Community Fundraiser supporting Ravi and his family, Claire was part of Ravi’s Dream Team Choir on Britain’s Got Talent.
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What the Plaid Cymru, SNP, Reform UK & Green Party Manifestos mean for the brain tumour community
We take a closer look at the pledges made in the Plaid Cymru, SNP, Reform UK & Green Party manifestos and what they could mean for people affected by a brain tumour.
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Charity wedding favours and gifts
Discover some great charity gifts to give if you’re going to a wedding or party this summer. And, if it’s your wedding, find some excellent charity wedding favours for your guests!
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An update from one of our Future Leaders Junior Fellows
One of our first Junior Fellowship grant holders, Dr Tyler Miller, has opened his own research lab focused on developing immunotherapies to treat brain tumours.
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The Glad Game and the Power of Positivity
The Glad Game has been turned into a book, play and film, to help people stay positive during the darkest times.
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Dabrafenib and trametinib – NICE guidance published
The guidelines recently published by NICE mean that NHS England will be using dabrafenib and trametinib – the first ever targeted treatment for childhood brain tumours – to treat children whose tumours have a BRAF V600E mutation.
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Using robots to help find treatments for glioblastoma
Recently, we were given the exciting opportunity to visit a research laboratory at Oxford University, headed by Professor Daniel Ebner, where they are using state-of-the-art robots to help in the fight against glioblastoma.
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Being Benign – Callum Ewing’s story
Callum is a recent broadcast journalism graduate who used his final project to highlight his brain tumour diagnosis. Being Benign is a two part documentary where he interviews his parents, others in the brain tumour community and also a professor who works on childhood brain tumours.
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Spotlight on Supporter Group, Firth’s Fundraisers
Paul set up Supporter Group Firth’s Fundraisers, and with family and friends, has raised over £20,000 since his diagnosis in March last year
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Key takeaways from the Labour manifesto launch 2024
We’ve taken a close look at the pledges made in the Labour Party manifesto and what they could mean for people affected by a brain tumour.
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Key takeaways from the Conservative manifesto launch 2024
We’ve taken a close look at the pledges made in the Conservative manifesto and what they could mean for people affected by a brain tumour.
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Key takeaways from the Liberal Democrat manifesto launch 2024
We’ve taken a deep dive into the pledges made in the Liberal Democrat manifesto and what they could mean for the brain tumour community.
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Young Ambassador Mel becomes Cheshire Woman of the Year
Meet Mel, who’s become passionate about raising funds and awareness since her brain tumour diagnosis 18 months ago.
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Men’s health week: Empowering men to prioritise their health
For Men’s Health Week, we chatted to some of our male involvement volunteers to learn more about their journeys. Here are their stories in their own words.
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“The scenery, from the mountains to the coastal roads, is spectacular, striking, stunning.” Andrew’s TwoWheelsJapan story
Meet Andrew, who is taking on a 3 month cycling tour of Japan to raise funds.
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The Ways Ahead project – finding better ways to support people with their diagnosis
The Ways Ahead project aims to find ways to support, and improve quality of life for those diagnosed with a lower-grade brain tumour. It also explores ways to help friends and family who are supporting those diagnosed.
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June 8th is World Brain Tumour Day. Last June, Kimberley found out she had a brain tumour. This is her story.
On World Brain Tumour Day this year, we’ll be joining the call to raise greater awareness and understanding of brain tumours – to help people like Kimberley dealing with a brain tumour diagnosis.
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Volunteers’ week: The importance of our community’s voice
This Volunteers’ Week, we’re spotlighting some of our amazing Involvement Volunteers and giving them the opportunity to share what volunteering means to them!
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The Stars Will Still Be There
Extracts from Nicola Nuttall’s book – The Stars Will Still Be There
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Expanding Theories Funding Announcement!
We are pleased to announce the two researchers who have been awarded our latest Expanding Theories grant!
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In remission – those precious words.
14 months after she first went to hospital, Simrat, 22, was told the news she longed to hear. She was in remission. Here we share her story.
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Mental health and growing up after losing a loved one to a brain tumour – Guest post by Ed Ryan
Ed, one of our Young Ambassadors, explains how losing his mum following her brain tumour diagnosis affected his mental health.
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The mental health effects of caring for someone who has a brain tumour – Guest post by Francesca Silverton
Francesca, one of our Young Ambassadors, explains how her mental health was affected after becoming a carer for her boyfriend when he was diagnosed with a brain tumour.