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We respond to new NHS waiting times for suspected brain cancer
NHS data shows waiting time targets for suspected brain cancer in England were missed for the fifth time in last six months.
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The need for more research participation opportunities
Every patient should have the opportunity to help contribute to the overall goal of meeting the needs of everyone affected by a brain tumour.
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Open letter from NHS, charity and community leaders to people with a weakened immune system
In May, we joined together with the NHS and many other charity leaders to co-sign the open letter below, encouraging people with a weakened immune system to continue to book in or visit a walk-in centre for their COVID-19 vaccines including a Spring booster dose.
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International Nurses Day: The call for greater Holistic Needs Assessments provision
Earlier this month was International Nurses Day, a day to celebrate the vital role that nurses play for brain tumour patients.
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Lets Talk Parliament with Jeremy and Victoria
Jeremy and Victoria, two of our Young Ambassadors, recently attended our MP drop-in session at Portcullis House and have written about their experience
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One Cancer Voice sets out 10 tests for the new 10-year cancer plan
We have signed up to a consensus statement developed by One Cancer Voice, a collaborative group of over 50 cancer charities, welcoming the Government’s Call for Evidence to inform a new 10-year Cancer Plan and setting out 10 tests that the new 10-year Cancer Plan must meet if it is to be successful.
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Making the case for more Clinical Nurse Specialists
Clinical Nurse Specialists play a vital role in delivering the best treatment and care, but there just aren’t enough staff to give every patient the support they need and deserve.
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APPG on Brain Tumours Inquiry starts
Today the All-Party Parliamentary Group on Brain Tumours (APPGBT) held the first oral evidence session of its inquiry ‘Pathway to a Cure – breaking down the barriers’.
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A Young Ambassador’s reflections on the first Less Survivable Cancers Awareness Day
Madelaine Powell, one of our Young Ambassadors, wrote about her thoughts ahead of the first ever Less Survivable Cancers Awareness Day on 11 January 2022.
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Launch of the first ever Less Survivable Cancers Awareness Day
As part of the Less Survivable Cancers Taskforce we’re urging everyone to be more aware of the symptoms of these six cancers and seek medical help at the earliest opportunity if they recognise the signs.
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New Tessa Jowell Centres of Excellence announced
Two more NHS Brain Tumour Centres have obtained Tessa Jowell Centre of Excellence status, joining nine others across the UK.
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We’re proudly supporting the new NICE “quality standard” for brain tumours
The new quality standard from the National Institute for Health and Care Excellence (NICE) is designed to help improve the quality of care provided by the NHS to those diagnosed with a brain tumour.
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All-Party Parliamentary Group on Brain Tumours meets to break down barriers to a cure
On Tuesday 7 December, the All-Party Parliamentary Group on Brain Tumours held a virtual meeting to discuss current policy issues including setting out why a cure is desperately needed.
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A Young Ambassador’s lobbying experience
Jeremy, one of our Young Ambassadors, recently attended an online lobbying event organised by the All-Party Parliamentary Group on Cancer and wrote about his experience.
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One Cancer Voice seeks Government clarity on cancer commitments in the Spending Review
Thanks to your help, the petition reached over 53,000 signatures and now One Cancer Voice is calling on the Government to clarify their commitments to strengthening the cancer workforce in the UK.
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Will you help us speak with One Cancer Voice?
Add your voice to ours by signing the Parliamentary Petition calling for the Government to urgently invest in establishing the UK as a world-beating force in cancer survival and care.
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Keeping Up Momentum in Scotland
Back in April, we published our brain tumour manifesto ahead of the Scottish Parliament elections to lay out the action the next Scottish Government needs to take to deliver vital progress for those affected by a brain tumour in Scotland.
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Launching our Manifesto for Scotland ahead of the May Parliament elections
Our Manifesto urges local MSP candidates to pledge support for those affected by a brain tumour in Scotland.
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Raising awareness of DIPGs in Westminster
We are working with Kirsten Oswald, MP for East Renfrewshire & SNP Westminster Deputy Leader
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Less Survivable Cancer Taskforce report calls for urgent action on faster diagnosis
The Less Survivable Cancers Taskforce (LSCT) is calling for focus, prioritisation and investment in order to speed up the detection and diagnosis of the UK’s deadliest cancers.
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Raising the profile of brain tumours with the Scottish Government
As a key member of the LSCT, we met with the Scottish Government’s Cancer Policy Team for a virtual roundtable on Monday 6 July
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Pressure for government response to funding research into brain tumours gathers momentum
Several high profile stories and a grandmother’s petition reaches this week’s PMQs and brain tumours are scheduled for a parliamentary debate
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Grandmother’s petition for research reaches milestone 100,000
Fiona started the petition to call the Government to tackle hard to treat childhood cancers after her grandson died from a brain tumour.
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Preparing for the roundtable with the Scottish Government’s Cancer Policy Team
Last Monday we met with our partners in the Less Survivable Cancers Taskforce (LSCT), in preparation for a virtual roundtable with the Scottish Government’s Cancer Policy team next week.