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Research into brain tumours: why money isn’t everything
Beccy Shortt, our Senior Policy and Public Affairs Manager at The Brain Tumour Charity explores the barriers surrounding brain tumour research.
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Review of Informed Choice released
Patients diagnosed with cancer should be told clearly how the NHS will store and use information about their case to help others in future, says a new report.
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New report on research and leaving the EU
The Science and Technology Select Committee has today published a new report on the implications and opportunities of leaving the EU for science and research in the UK.
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Task and Finish group on brain tumour research
We attended the Task and Finish Group on brain tumour research. As experts in the brain tumour research landscape, we were invited to be part of this group following the petitions committee debate on the funding of research.
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Thousands surviving for decades after cancer diagnosis… But what about brain tumours?
While a new study reveals people are twice as likely to live at least 10 years after being diagnosed with cancer than at the start of the 1970s, this doesn’t tell the complete story.
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Our research highlights the financial implications of a brain tumour diagnosis
One in two people affected by a brain tumour experience financial difficulty and 28% of people with a brain tumour had to give up work entirely.
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Thousands to benefit from Enhanced Supportive Care programme
An innovative programme to improve the care and experience of patients with incurable cancer is being rolled out across the country.
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Brain tumour patients continue to report a poorer experience of diagnosis, treatment and care
People affected by a brain tumour continue to report a poorer experience of diagnosis, treatment and care when compared across all cancers according to the largest survey of cancer patients in England.
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NICE release a new Quality Standard for cancer referral
The National Institute for Health and Care Excellence (NICE) have today released a new Quality Standard (QS) for referral when Cancer is suspected.
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The EU decision: Our strategy continues
On the 23rd June 2016 the UK voted to leave the European Union (EU). We do not yet know how this will affect the brain tumour community.
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Government publishes formal response to calls for more spending on research into brain tumours
The report follows a debate about funding for brain tumour research in the House of Commons on April 18.
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Government recommendations for the cancer registry data
We are working with Cancer Research UK, Macmillan Cancer Support and other cancer charities to make recommendations to Government on the subject of cancer registry data.
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The National Cancer Diagnosis Audit will better understand the journey to diagnosis
Late diagnosis is common for people diagnosed with a brain tumour. 53% of high grade brain tumours were diagnosed as an emergency in 2013 – more than any other cancer.
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Petitions Committee report on research funding for brain tumours debated in House of Commons
Yesterday saw the Petitions Committee report on research funding into brain tumours debated by MP’s in Westminster Hall. Over 40 MPs spoke at the debate, with only standing room left as proceedings began.
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MPs to debate brain tumour petition report
A call for government action to prioritise brain tumour awareness and research funding will be debated in the House of Commons on April 18.
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The launch of our devolved nations Manifestos
Ahead of the national elections in May 2016 we have launched manifestos in Wales, Northern Ireland and Scotland.
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The Brain Tumour Charity’s response to UK Government proposals on PIP
Last week, the UK Government announced changes to the eligibility criteria for Personal Independence Payments (PIP) as part of the 2016 Budget.
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The Petitions Committee’s report on funding for research in to brain tumours is released today
The e-petition calls on larger cancer charities and the government to invest more in research into brain tumours.
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Introducing manifestos for Scotland, Wales and Northern Ireland
This March we’ll be launching manifestos in Scotland, Wales and Northern Ireland ahead of the devolved nations’ elections in May.
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The reality of brain tumour treatment and care: new report for policy makers
Finding Myself in Your Hands focuses specifically on peoples interactions with the NHS, healthcare professionals and their treatment of brain tumours and gives us an honest insight into experiences across the UK.
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APPG on Brain Tumours this week
On Wednesday 9th December the All Party Parliamentary Group (APPG) on Brain Tumours held a meeting in Westminster to discuss the new five year Independent Cancer Taskforce Strategy. The event was well attended and several MPs came along to listen to the experiences and concerns of our supporters.
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New NICE guideline on brain tumours
We were recently pleased to hear that the National Institute for Health and Care Excellence (NICE) will be developing a new guideline on primary brain tumours and cerebral metastases.
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You’re invited to our APPG on brain tumours
We would like to invite you to our meeting of the All-Party Parliamentary Group (APPG) on Brain Tumours.
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Emergency diagnosis more likely for brain tumour patients
Brain tumour patients are more likely to be diagnosed via a hospital A&E department than those with any other type of tumour, new figures show.