Tag: supporter stories

Molly aces GCSE’s whilst battling undiagnosed brain tumour. She receives 7 A*s and 4 As following proton beam therapy in America.

Zoe’s mum Julie lost her life to a brain tumour last year after starting the Heads Up supporter group, which has raised more than £44,000.

“We take it in turns to be positive for each other.” When his fiancée Hailey was four months pregnant with their second child, Nathan was diagnosed with a glioblastoma.

“Just six weeks after we got together, Neal was diagnosed with a glioblastoma. He said I could leave him, but I wasn’t going anywhere. He was the love of my life.”
Watching Saturday’s episode of Casualty when Glen reveals he has a glioblastoma and tells new girlfriend, nurse Robyn, it’s not fair on her to stay with him, struck a chord with Sara Challice.

For the majority of those diagnosed it takes longer than you’d think. A survey by The Brain Tumour Charity found that more than a third of people with a brain tumour had visited their GP at least five times before they were diagnosed.

Imagine the anguish of being told your nine-year-old daughter wants to kill herself. That’s what Zainab faced as her daughter, Amber was driven to despair by her undiagnosed brain tumour.

At the age of 29, Emily Morris didn’t feel right – but she couldn’t quite put her finger on the problem. Neither could her doctors.

The profound side effects of brain tumour surgery still disrupt and dominate life for Josh, his parents and his three siblings.

The stark impact of a childhood brain tumour diagnosis has been captured by a mother who photographed her young son every month as he was treated for the disease.

Tributes have been paid to The Brain Tumour Charity’s ‘sassy and brave’ Young Ambassador Tasha Floyd, who has died at the age of 24.

Ewan MacKerracher, a ten year old boy from Coleraine, Northern Ireland, has been diagnosed twice in the past with brain tumours. He has been waiting almost two years for a routine scan that could show any recurrence of the disease.

In July 2015 Alice was discharged after nine years of treatment and monitoring for a brain tumour. Her mum Emma talks about what it means to get to the end of treatment.

When my mother Janet was diagnosed with the brain tumour that eventually took her life, I was terrified. Like the rest of my family, I had experienced nothing like it.

We are supporting Carers Week, an annual campaign to raise awareness of caring, highlight the challenges carers face and recognise the contribution they make to families and communities.

Sacha Langton-Gilks lost her 16-year-old son David (DD) to a brain tumour in 2012. We invited her to share her family’s experience, and her passion for improvement in end-of-life care. This is an edited version of the speech she gave at our first paediatric brain tumour information day, which was held in Southampton in May 2015.